Thursday, August 4, 2011

#PromotingWellness - A Series of Outcomes: Self-Care

I had the opportunity to attend a conference August 1 and 2, 2011 in downtown Los Angeles.

Promoting Wellness: An Integrated Approach to Homeless Service Delivery

I highly recommend it to you when it comes to your neighborhood.

Don't let the title fool you.  The conference was about many things. And the best means I have of *delivering* what I learned to my community is through this blog, because I can easily share this blog through my social media outlets.

My previous post on non-compliance was sparked by this conference.  I had no words to express what I was feeling in regard to the fact that many of us -- "consumers" of help care services --  are labeled non-compliant until I attended the sessions at #PromotingWellness.

It was especially poignant that in one of the role-play dialogues, the first day of the conference, I was shouted down at my table for being non-compliant.

That table experience lead me to the very same feelings I've had when dealing with service providers during the two years leading to my homelessness and the 8 months of my being " a person experiencing homelessness."  During that time so many service providers handed me dictums and I bravely (or foolhardily as I was told on occasion) started saying "No, that is not something I can live with."

First and foremost I have learned a bit of language at this conference.  My goal with that is to express (more clearly for others) things in my consciousness I've been carrying around, with language others can understand.

If you know me well, you know that I am often frustrated by the fact that I see and observe things and yet cannot find adequate means to communicate it to others.  Others look at me and respond in a variety of ways some of which include,
  • "Huh?"
  • " ::blank stare:: "
  • "I didn't get that"
  • "Would you repeat that using different words?"
  • "  ::wandering off muttering, 'Chick is crazy'::   "
  • "Dog-gone it Rd, I cannot understand  your code!" (I personally love this one because it comes from someone I value highly)

Having the tool of language that others use on an hourly basis is a means of increasing my feelings of self-efficacy.  A valuable outcome of any conference.  Extremely valuable as some service providers give it to their clients, for instance, PATHAchieve Glendale has an EMDR therapist who shares the value of giving language during #WellnessWednesday Stress Management and Parent/Family Groups each week.

This hour's post is on one of the very important concepts carried throughout the Promoting Wellness conference:  Self Care.

While it is aimed directly at those in the high-burnout field of Help Care Delivery, it is valuable to each and every person.  Because at the very crux of things, we are all the same:  human species; with feelings, goals, desires; and the need to be nourished.

As a trainer, I am impressed with not only the information but the fact that it was incorporated into the conference setting as a main stage event several times during the day under the title "A Taste of Self Care."

Katherine Volk was the presenter.  I'm impressed with her.  Especially since she was presenting some of the same techniques that I have been looking forward to presenting to my own peers.

As well, I'm totally on-board with her comment of "take the information from the disk we've included in your packet and share it.  Print it, e-mail it, pass it out to your friends and co-workers".

I've taken her literally.  Please be aware the link material is Copyrighted (2008) by The National Center on Family Homelessness

That said, here's information on Self Care:

What About You? A workbook for those who work with others.

What if you gave yourself some time to read the information and experiment with it?

Wednesday, August 3, 2011

What's in a label?

Non-compliant.

What are you aware of as you envision non-compliance?

What do you feel when you label something or someone as non-compliant?

If you say no to something are you non-compliant?

If someone says no to you are they non-compliant?

Are you a help care or service provider?

If someone says no to the help/service you want to provide, is that someone non-compliant?

What effect does your label of non-compliance have on the person you are labeling -- even if you do not say the label to their face?

Are you trying to persuade me to change?
Are you assuming you know what's best for me?
Are you criticizing, shaming, or blaming me to invoke change?
Are you labeling me?

Are you surprised I'm not changing?

Am I non-compliant?

May I offer you some hospitality? Would you consider exploring another viewpoint with me?

People Know When We Believe In Them

A Taste of Motivational Interviewing

How would life be different if we all had safe places to explore conflict and difficult realities?

Friday, July 29, 2011

Thoughts on Help - omg'dss it's long and rambling!

My therapist said to me two days ago, “You don’t accept help” or “You have difficulty accepting help.” Or did she say, “You have difficulty asking for help.”?

I’m thrilled to say we have a difference of opinion ‘cuz it can be traumatic to confront an authority figure. I get 100 points on the courageous-acts-scoring for daring to disagree! And, my therapist will figuratively pat me on the back for acknowledging my disagreement in two weeks when next I see her.

I definitely want help.

However, what you think is help may not represent help to me at all.

It is critical when you “help” that you and the “helpee” are resolving the same perceived crisis.

One person’s definition of help is another person’s definition of trouble, danger or abuse.

If I were a business person considering an opportunity, you’d expect me to analyze and decide whether it is of value to me.

As a consumer, it is my right to say, “this product meets/does not meet my needs”.

I am:
  • previously homeless;
  • currently housed only because a group is paying a third of my bills (I call that “me-accepting-help” on a monthly basis by-the-way);
  • not in the best of health;
  • coping with a lower than anticipated income due to unexpected circumstances still being dealt with; and
  • unable to meet my survival needs.
I am still a business person and a consumer, with the same rights when I assess *help* that is being offered to me.


Yes, I want help.  (I don't suppose you know anyone willing to come in daily and help me dry scrub Borax into the carpet and then vacuum it up in the evening for another two weeks, so I can finish dealing with my allergy to flea bites?  It's wearing me down. And I don't even have any animals in residence.)

  • The fact that I am starving is a symptom. When it happens repeatedly it becomes a pattern.
  • Resolving for the symptom does not solve the challenge.
  • Doing the same thing over and over while expecting different results does not solve the challenge.

    Someone handed me some some spinach to eat as I left to catch the bus Wednesday.  It was important to that person to tide me over for that moment. Yes, I’m grateful. Yes, I needed it. Yes, I accepted it.  Yes, I munched it down.

    Yes, that solves the immediate symptom, however, the symptom is going to crop up again, and again, and again, and again and …. many agains.

    Does it change your brainstorming suggestions if I say, ”I’m depressed ‘cuz I perceive no change available to the pattern of me starving for a number of days each month”?

    Oh, the D-word. That changes things entirely, eh? Say the word depression and two things struggle to come out of people’s mouths:
    Are you going to hurt yourself or anyone else?
    Why don’t you take a pill prescribed by a doctor to stop the depression?
    Talking about depression in public is on a par with talking about death. It’s a social taboo.

    By-the-way, no, I’m not suicidal, no I will not take prescribed (or non-prescribed) pills or alcohol to mask depression. And I have a brilliant therapist, so I’m *safe*.

    However, even copping to having depression is yet another way to be stigmatized by narrow-minded people.

    Just like the word “homeless” brings about stigmatization.

    It’s also a social taboo to turn down an offer of assistance. If you handed me a loaf of bread, a package of sliced cheese, a package of hot dogs; a carton of milk, and a couple of oranges – you’d most likely feel you gave me healthy food and resolved my immediate dilemma.

    Two points:
    1. If I ate your offering I’d wind up unable to think (wheat, red meat & sugar); congested (dairy, wheat &; salt); blood pressure skyrocketing (salt); with mouth sores (orange); and with a headache and sticky, congested inner ears (processed foods & chemicals used on non-organic foods).
    2. Your offering does not help me alter the fact that starving is only going to happen again when my body signals it’s hungry as I have no means of obtaining healthy food for half the month.
    Yet, if I turn down your offering there’s a 90% chance you’ll look askance at me with an internal musing of “she just turned down help, she doesn’t want help”.

    Seldom am I asked, “What have you explored to resolve this issue?”

    Most often, I’m told, “Well, have you done this?, what about ________?, have you tried ________?”

    I am an intelligent, articulate person, used to solving problems. Yes, if I have a problem it’s not usually something I’ve just whipped up in my imagination. Chances are I have already found out about (or implemented) the first- and second- round of brainstormed resolutions.

    That said, there are some things I have to tell you "Treat me as if I were a Kindergartner while you are explaining this."  Trust me, if I say that phrase to you, I mean it.  I generally know when I'm not understanding something.

    The fact that issuance of my SSDI check on the third of August is caught up by a bunch of people who cannot agree on what is and isn’t important on a national scale  http://news.yahoo.com/blogs/exclusive/uncle-sam-pay-no-debt-deal-182942805.html is something I don’t have the energy to focus on. I'm too tired from Boraxing my rugs daily to give much thought as to what will happen if I don't get my scheduled SSDI payment on Wednesday.

    Constant hopelessness wears you down in any situation in life.

    It’s one thing to ask for help, it’s another to have to ask for it continuously.

    I am not the only person this is true for.

    Listen to those who are homeless.  Listen to the 99ers.  Listen to the elderly indigent.  Listen to the youth indigent.  Listen to those with low-income.  Listen to the middle-class who are becoming low-income.  Listen to the upper middle-class who are becoming middle-class.  Listen to the upper class who are afraid of losing their way of life.

    Listen to anyone. Actually listen to them. Put your work, your next meeting, your next telephone call, your next social media interaction, your next entertainment moment on hold for 15 minutes. Just be with someone and encourage them to talk. Listen.

    I hear my friends and associates saying to me, “talk to us” and “why don’t you ask me for help?”

    What would you have me ask you for and how often would you have me ask it?

    Money every month?  Food every month?  Rides and helping me schlep stuff for my advocate and personal endeavors at various and sundry hours, particularly at night when the buses to my local area dry up and the one-mile walk from the nearest stop becomes very dangerous?

    If this particular lack of food was a one-time thing I could ask for a couple bags of groceries to get me through the next few days; or $200 to get me through the next 30-days foodwise.

    It’s not a one-time thing. It’s been 4 months and will continue for I don’t know how long.

    What kind of help do I need? I need to finish dealing with the impossible things I learned as a child and have carried into adulthood. I do that through an excellent Wellness Program at a shelter. The therapist who facilitates these programs is worth her weight in gold (or fresh food, depending on what you value most).

    I know some of you are persistent about “what can I do to help?” So for you, I'm putting up a list of what I physiologically need at the bottom of this post. (The food I need EVERY month, the items are one time deals.) If you read something that you feel attuned with, then you can connect with me about it.

    That's the most effective way I can think of to let people know, otherwise I'm constantly talking and dwelling on it.  I've got to say, I'd much rather be putting my focus on finding ways to smile because the frowning is changing the structure of my face, and except for my severe periodontal disease and poor eyesight, I pretty much like my face.

    What do I expect from anyone?  And what do I expect to be able to give to people?

    I love that you care. I love that you are aware. I love that you make time. I love that you listen to me. I love that you let me listen to you. I love that you spend your energy and time to express and interact with me. I love that I am on your radar.

    I love that you consider whether or not to take the time to write out your thoughts on this diatribe and post said thoughts in the comments section.

    Remember this – I’m housed.
    I’m not sleeping on the streets and in danger of skanky people traversing those self-same streets.
    I’m not directly confronted by the cold and heat of each day without any protection from it.
    I can go to the bathroom when I feel like it as long as I have something to wipe myself with. TMI?
    I can take a shower or a bath when I feel like it.
    If I don't have any clean clothes because I cannot afford the quarters for the laundry machine, I can wash an outfit by hand the day before.
    I have a place to be where no one else can come in unless I open the door.

    In comparison to a huge portion of the global population, I am well off.

    And I am grateful for being in the position I am in.  Even if it's miserable.  It's another opportunity,

    :) Here, have a smile, I have some hidden away for times like these.  It's always good to have a stash of smiles.






    The list for those of you who want to know what I need:

    Food:
    • Raw shelled Sunflower Seeds, cashews, almonds, walnuts, pine nuts
    • Dried: Organic Adzuki Beans, Large Lima Beans; garbonzo beans/chick peas
    • Dried, textured soy protein
    • Andean Dream Quinoa Pasta (Gluten Free)
    • Ancient Quinoa Harvest Supergrain Pasta (Gluten Free)
    • Gluten Free Old Fashioned Rolled Oats
    • Yellow Corn Grits/meal (for making polenta – not the denatured white grits)
    • Chia seeds
    • Dried goji berries
    • Cold pressed extra-virgin kalamata olive oil
    • Fresh uncut pineapple
    • Fresh organic:
    • Apples, key limes, bananas, celery hearts, red onions, green onions, blueberries, whole unpitted dates, grapes, papaya, peaches, plums, raspberries, carrots, cranberries, figs, watermelon, avocadoes, cucumber, tomatoes; potatoes; yams; parsnips
    • (No oranges, lemons, mangoes, strawberries, cantaloupe)

    Items:



    Treatment/Health
    • Periodontal Care (I estimate six-figures easily, since every tooth in my head has to be pulled and replaced so I can breath without flinching, eat without wincing and chew regular celery stalks for their texture rather than having to food process it so I have a chance of digesting what I ingest.)
    • Chiropractic and massage therapy for my disabled arm/leg issue.

    Sunday, June 19, 2011

    What is #EmPowerConnect?

    ::grin:: I'm not getting asked often enough "What is EmPower Connect?"

    And what the heck has it got to do with Thumbs Up for Homeless People you may be asking.

    If you're not asking ::chortle:: I'm asking for you!

    EmPower Connect is a joint effort between WeAreVisible.com and Project Peer Return Support Network to bring computer and mobile connectivity to those most in need: homeless friends who are not yet housed.

    Launched September 2010, WeAreVisible has grown into one of the many phenomenal communities available for homeless, and homeless service providers to reach out and touch someone.

    The Facebook and Twitter online communities of WeAreVisible are eloquently managed and facilitated by @CareyFuller, currently a homeless mom.  She does this work as a volunteer, while writing professionally, taking care of her family and seeking enough income to procure a home and childcare.

    Of course, there is Mark Horvath, road-warrior (@hardlynormal) bringing the stories of all the homeless he comes across to life on InvisiblePeople.tv

    Project Return Peer Support Network is Los Angeles County's oldest program run by and for people with mental illness.  Their motto is "taking charge together."

    They are also a truly awesome 501(c)(3) organization that wrote a grant to provide me (as an outreach/training/expression volunteer with WeAreVisible) with two laptops and mifi to be able to reach my comrades in the street and not be tangled up trying to get to facilities where computers are available to the low-income, poverty-living, and homeless.

    We work diligently to provide training and support, and have had phenomenal success with the people we've touched so far.

    PATHAchieve Glendale has been instrumental in many of the success stories springing from EmPower Connect.

    Currently a couple residing at the shelter are learning the basics of computer use:

    They've spent time learning how to get the computer to do what they want it to; how to research online;  where to go when they have questions and how to access their data.

    ThumbsUpForHomelessPeople.com provided the flashdrives to keep their precious data files on, as well!

    Icing on the cake? -- As the EmPower Connect volunteer on-site at PATHAchieve, I've had the opportunity to assist in setting up the couple's resumes in Word, and the hugs I've received in return are absolutely, without a doubt, among some of the best in the world.  (Consider that a great thing, because I have the benefit of having learned the fine art of hugging by receiving them from masters like @JeffPulver at the #140conference!)

    The opportunity now to brainstorm on expanding the project to a non-crisis toll free peer support network component, reaching out to recently housed within their first 6 months thrills me.

    I believe the recidivism rates of homelessness can be transformed and dramatically lowered with active outreach to provide access to social community.

    I was only homeless for 7 months recently -- that's an exceedingly short time to be homeless; many of my compatriots have been without housing for years, even decades.

    It's not just as simple as putting a person in a house and expecting that to resolve the issue so you can move onto housing the next person/family.

    Even with as little time as I spent during this episode of homelessness, it's difficult to adjust to being housed.  When you are housed, you lose your community.  For example, I am well out of the area where I had friends among the homeless community.  I am isolate.

    Now, I'm the kind of person that adjusts well to being isolate. And even for me it hasn't been easy.  I write, tweet, and FaceBook post to keep in touch with people.

    To be part of a community.

    Having access to social media tools is integral for my social/mental health.

    I am not unlike anyone else in this respect. Everyone needs community, I believe lack of validating, acknowledging community to be a reason for gangs, dysfunctional relationships, and many other disasterous bondings in the human social realm.

    It wasn't until I spent time with a brilliant EMDR therapist recognizing memories I've buried very deeply, that I became aware I have been homeless many times in the past.  It simply wasn't labeled as homelessness, because I wasn't an addict, prostitute, obviously mentally challenged, or otherwise socially unpresentable.

    My homelessness cycle originally spawned at the tender age of 17 1/2 when I ran away from home to prevent myself from committing suicide. At that time homelessness for me was called "being a runaway".

    Over the years, in cycles of months to years, I've lived on the streets and on other people's couches at least 8 times (other than August 5, 2010 thru February 2, 2011).  It was called "inbetween jobs, inbetween house/animal sitting gigs, and inbetween relationships."

    Having support and encouragement to assist with acclimation to being housed and the facilitation to gain new or reinforce existing community is critical not only to ending homelessness, but to preventing it for the many who face homeless now.

    Transforming, ending and preventing homelessness is something all of us at We Are Visible hold dear to our hearts.

    Thumbs Up For Homeless People is a way you can recycle your unused thumb drives to transform someone else's life.

    It's a little thing and it goes a long way.

    You don't have to train anyone to be an EmPower Connector -- you are one now. You're online and you have the ability to acknowledge and validate others.

    And if I haven't been clear, by all means, ask me,

    "Hey Rd, what is EmPower Connect?"

    Friday, June 10, 2011

    #MakeADifference #changeYourMentality #changeYourWorld - Use Social Media

    graphic copyright JaguarWoman licensed use
    Any crisis is a turning point. It is a moment where instability can be turned into balance. It is a moment where transition can be effected and views can be affected.

    Community is where you and I learn about relationships and how to be human.

    Listening is the one skill at everyone's beck and call that truly empowers in any situation.

    Homelessness is a crisis.  Twitter is a community. #140conf is a place where listening and participating can rock your world.

    My point?

    Social media is responsible for the fact that I am no longer homeless.

    That bears re-typing: I am NO longer homeless, and it is because of social media.

    Less than a year ago, I would not have joined Twitter for love nor money.

    I perceived it as a place where people talked about burping, farting and generally shared drivel I could not bring myself to be interested in.

    I joined Twitter kicking and screaming because another then-homeless colleague (whom I met through this blog, which I started in desperation) told me, "You need to go to Twitter, there are people there who can guide you."

    The things you'll try when all hope seems to fail.

    Yet -- here I am.

    Housed.

    Safely ensconced in a human community I never could have found without social media.  (Thank you Shelene Bryan and Skip1.org)

    Touting the benefits of (and training my comrades on the streets in the use of) social media. (Thank you @WeAreVisible and PRPSN.org)

    Let me be more specific --> Twitter led me to @hardlynormal, who led me to #140confLA 2010, which re-opened my belief in humanity.

    I, NOW, am housed because an organization saw me speak (via the internet) at the 2010 #140confLA.

    I, NOW, am in a community of brilliant people:  thinkers, do-ers, inventive, creative, and great teachers.

    When Jeff Pulver uses the phrase "explore the *State of NOW*" it has a poignant and very personally significant meaning to me.

    I look forward to returning the favor to #140conf in the future.

    Rock your world ... give yourself the gift of changing your life on June 15 and 16 in NYC.

    I was homeless THEN.

    I was communityless THEN.

    I am housed and part of a great community in the state of ...

    graphic copyright JaguarWoman licensed use
    ...Now.

    Thursday, June 2, 2011

    Thank you

    I feel stunned.  Wait, let me rephrase that ... I feel illuminated.

    Thank you.

    People have contributed to me getting the blood pressure unit -- and I've have had a moment of being speechless.

    If you know me ... me being speechless in a public situation is something that happens rarely.

    A friend of mine uses the phrase "wrecked" when something engages him beyond the pale emotionally.  I use the phrase "illuminated."

    Each of us has a phrase to use.

    I encourage you to not only find yours, but to use it whenever you get the chance.

    I was illuminated when I went into ER a week ago Tuesday for presenting symptoms that could have been a heart attack or stroke.

    I was illuminated when my EKG read nearly perfect, and my blood work did not bear out a coronary event at that moment.

    I was illuminated when I recognized how high my blood pressure is skyrocketing and that I not only know techniques to reduce it, but that if I had a measuring device I could constantly track how those techniques are working.  This in turn would let me share with people valuable techniques they might want to explore in their lifestyles.

    I was illuminated because a handful of people took the time and effort to be aware of me and that is something that has value beyond any coinage and any material object.

    Awareness is a form of nourishment.

    The human species -- like every other entity on earth, needs to be nourished.

    Individually and in community.

    Thank you for nourishing me.

    I am very grateful.

    Wednesday, May 25, 2011

    Thank yous, and panhandling.

    All right then.

    A very special thanks is due to the folks who assisted me with "morale" support and kept their mouths closed for me whilst I dealt with the issues and stress of going into ER.  You are all well and truly loved.

    If you didn't know about my most recent ER visit, it's not because I don't love you.  It's because I needed as little stress as possible and even connecting with four people was problematic for me.

    Now -- I need to ask all my friends to pass this onto anyone with a few bucks.  I must return to tracking my blood pressure daily.  Funds are not available to replace the blood pressure monitor that was "lost" during my homelessness.

    And more visits to ER are not going to help, however, being able to keep track of my blood pressure during the day and night is going to allow me to track what I'm doing that's working and what is not working in bringing it to a manageable level.

    Therefore I need to panhandle to get the device.

    This is a direct request for money, if you want to assist me to gather the funds necessary for my desired OMRON Wrist Blood Pressure Monitor Series 7, please go here to put money directly into my PayPal account.

    http://lostawarenessrd.chipin.com/omron-blood-wrist-blood-pressure-monitor-series-7

    If you don't want to, that's absolutely okay!

    My thanks to all, and the next blog post will be a bit more lengthy and on a different subject.

    May your day be as bright as mine is, and here's a smile to go with it!  :)

    Sunday, May 22, 2011

    But you don't look ....

    What don't I look?

    Sick?  Homeless?  Previously Homeless?  Hungry?   Tired?  Old?  Young?   Healthy?  Rich?   Poor?   Helpless?    Hardy?    Mad?    In Pain?   Anxious?    Depressed?    Impressed?    Fatigued?    Perfect?     Imperfect?

    Or is it something else "I don't look ..." ?

    Question.  Challenge. Think for yourself.

    My job is to challenge things.

    It's all our jobs.

    It's a part of life.

    Some of us challenge things that are more obvious than others.

    In a sense we are all Hamlet.

    "To be, or not to be."

    Are you roused to be who you are or do you evade yourself?

    In the dark and light that is my mind, I hear Yoda "... do or do not. There is no try."

    I depart from the First quarto, and move straight to our modern day version of the discourse;

    "Whether 'tis nobler in mind to suffer the slings and arrows of outrageous fortune, Or to take arms against a sea of troubles and by opposing, end them."

    Is it true spirit to use negative coping strategies as a familiar and reliable way to protect oneself from all the stuff life has to throw at you?

    Can you be shocked from your unthinking acceptance of what you have been taught?  Is it a virtue to sit back and leave it to whatever Heaven you imagine to settle things?

    Or is it true spirit to take action, to the best of your ability -- to move from insistence, empathy, passion and heart ...

    ... to challenge

    "To sleep--perchance to dream: ay, there's the rub"

    Do you sleep? (Live by what others say, unexamined?  unchallenged?)

    Perchance to dream (Accepting others terms, unquestioned, the pablum that is fed to the masses to keep them under control -- manipulated?)

    Can the Heaven you subscribe to have created humans as thinking creatures and yet have issued an edict of "Oh wait, don't use those minds of yours"?



    Aye, that is an obstacle, isn't it?

    To be or not to be, my friends.  That IS the question.

    And how you answer it affects your life twenty-fold.

    Don't look at things the way I do.

    Get out there and question.
    • Question what you see.
    • Question what you hear.
    • Question what you smell.
    • Question what you feel.
    • Question what you sense.

    Question.

    Find answers that resonate within the core of your being.

    You make a difference.

    Never believe otherwise.  And by all means, question what I just said.

    I believe.  I question. Previously, I spent 55 years thinking I didn't make a difference -- it's what I was taught.  I acquiesced -- it was a matter of survival.

    I am now 56 and 1/2 years alive.

    And I don't look like a lot of things.

    Do you know who I am?

    More importantly do you know who you are?

    We have all suffered the slings and arrows of outrageous misfortune.

    I challenge you ...

    Do or do not.  What is it "to be"?

    Your age does not stop you, your health does not stop you, your poverty or wealth does not stop you.

    You affect everyone in your life.  Whether that's one person (yourself) or myriad (your friends or enemies) -- YOU AFFECT everyone in your life.

    No matter how you look, no matter what your personal life has for slings and arrows.

    I cannot in good conscience close this blogpost without giving you some information to question and research.

    I have spoken in generalities above, because I see the patterns in many things.

    However, there are numerous of us that deal with what are called "invisible illnesses" during our days and nights, and that I can give you concrete information on.

    The list below is specific to people wanting to know more about invisible illnesses. 

    It is NOT comprehensive, nor all-inclusive.  It IS a start to help you ASK QUESTIONS.




    Personally, I run into a few folks now and again who don't understand why I need to rest so much, sometimes for hours, sometimes for a few days.  I don't know either, I have no concrete diagnoses for anything.  I've been told my fatigue is mental.  With those folks I like to share The Spoon Theory, even though I do not have lupus -- because I resonate with what Christine says, and if I choose to dedicate time to you, know that you are one of my spoons.

    The Spoon Theory written by Christine Miserandino

    Anxiety

    Bi-Polar


    P.T.S.D.

    LUPUS

    Fibromyalga


    Crohns



    Diabetes


    Arthritis

    Sarcoidosis


    Epilepsy


    MS



    Depression